(adsbygoogle = window.adsbygoogle || []).push({}); Hi. I felt I needed to make this thread because, well... I've been treating some people like shit occationally and I'm sure a pang of it has hit this forum occationally. Over the past two months I've been coming to terms with a few things that I want to explain and I will try to keep this brief. I would appreciate it if people would be respectful in this thread, I'm putting this here so everyone can see it but that doesn't mean I want people to make stupid comments or silly jokes. Please show some respect and dignity and prove to me that NGU isn't the immature childish place I've been accusing it of recently. This is a very personal issue, please understand what this is like for me before deciding to take the piss.


OK, with that out of the way I'll explain what's happening. As some members, particularly those who frequent the debate section may know, I have Ehlers-Danlos Syndrome. It's a degenerative connective tissue disorder which causes, well, numerous medical issues. The most frequent problems it causes include chronic pain, repetitive joint dislocations, brittle bones, blindness, strokes/anuerisms/heart attacks, kidney failure, bladder failure, reaccuring migraines, insomnia, chronic fatigue syndrome, irregular body temperature and seizures. I'm starting to show a large number of these symptoms.

The fatigue and pain are becoming extremely difficult to handle and I find myself frequently angry. Due to other issues I found myself in financial trouble and was forced to move in with my parents temporarily. What was originally going to be only a month or two has now been over a year and unlikely to change soon. My medical issues are preventing me from finding work and I cannot reasonably support myself without help from family which is making me feel less than useful. I have recently been told that the Job Centre wants to put me forward for "work from home" schemes because they don't feel I'm fit for work.

I have a lot of worries. I expect to be in a wheelchair in my 30's, and I will likely need surgery many times. I'm feeling less and less capable and feel an overwhelming need to use what I know I can still use, my mind. Because of this I've been effectively trolling the debate section and because I frequently feel angry, tired and in pain, I'm not just showing my knowledge but being a huge dick about it in the process. This thing is, frequently I'm lashing out without realising it, and it's only minutes later I realise I'm just projecting my pain and anger on others.

As a 25 year old man I would like to feel I had some focus. While I'd be frustrated anyway as I'm living with my parents, unemployed and single, all things I'd like to change, with my current medical issues I can't change these things any time soon and I have no impetus to do anything truly positive.

Now, I'm not looking for advice. Trust me, it's not worth trying because I need to come to terms with everything first anyway, and I largely doubt anyone on NGU even knows what Ehlers-Danlos Sydrome is let alone had any practical ideas on how to deal with it and it's progressing problems. All I want to do is vent, to let people know why I'm being so short-tempered and to hopefully account for my volatility. In a round about way this is both a warning and an apology. I don't mean to take my frustrations out on the people here, and while I'll probably do it on occation again, I apologise. I'm afraid being a calm man just isn't possible for me right now, at the very least however, I'll try to be reasonable for the most part and I hope you can all bare with me. What I'm going through isn't easy and it frightens me at times.

Thank you all for reading this, it's good to get this out.

Honestly, I purposely avoid drugs of any kind unless I definately need them as I find you only end up relying too much on them. It's a constant annoyance to me that I take as many pain meds as I do. I'm even tee-total and have been for years, so I don't ever see myself going the self-medicating route.

I do have a weakness for Caffeine though, a leave-over from my uni days.

I only have epilepsy so I can't know in what kind of pains you are, but I hope you have a way to reduce the pain.

We've already spoken about this in the group Tornado, but I think the hack a few weeks ago lost a few of the posts :confused:

But I wish you well, it's a shame that such good people as yourself have this to deal with and then genuinely horrible people often get given such luxuries in life. Stay positive :bro:

Thank you all guys. I appreciate the nice sentiments and I feel much better knowing there's a little support here. As strange as it sounds, just knowing there are people who are aware of my situation makes it somewhat easier to cope with.

I hope people don't mind, but I'm going to use this thread as somewhat of a pulpit for getting out my thoughts on what's happening. I have my doctors appointment on Friday so hopefully I'll be able to get some progress from that, but whatever happens I'll keep everyone informed. If anything, it helps order my thoughts on this by talking about it.

I'm really sorry to hear this Tornado. It sound like an awful aliment to say the least. I just hope it doesn't stop you from posting here as I enjoy many of the well thought-out posts you make. I can't really give you much advice as I don't know anything about your condition, maybe you should try and find an outlet for your anger.

I think you may want to consider what Low Key was saying about marijuana. Personally, I have never used it but I heard it can be effective for people with conditions similar to yours. I'm sure you know that painkillers aint to good for your liver so it may be better for long-term pain relief.

Anyways your a great guy and I hope you stay well and live a good life.

Thank You for letting us know. This clears up several things for us about why you have been so different lately. I hope you get better!

I've read previous posts. You should make some weed brownies. Who don't like brownies?

Personally the only thing wrong with me is that I have glaucoma (I can become blind at anytime which I am blind in one already eye). I wish I could give some advice but I really dont know.

Wow thats some serious stuff.
Best of Wishes.